Today Alexa headed up for her monthly appointment. As it landed early in the month we’ll be back up in 28 days at the end of the month, so she has two clinics this month.
She did really well, managed her anxiety quite well and was rewarded with a trip to the craft store to spend some of her birthday money. Dr C was glad to see her all nice and healthy. She told us that this winter is no different from last year, just because she is in maintenance doesn’t mean she isn’t at any less risk for lower counts and hospitalization for fever and neutropenia. crap. I guess I thought she’d be at less risk. What we have to watch is exposure to sick people. So letting family and friends know that I will remain as rabidly protective of her as I was earlier in her treatment. If you are even suspicious that you may be sick, stay away. I’ve had my fill of hospital stays and I know Lex has as well. If she catches a cold it knocks her counts down very low, which is what happened last month when she caught a mild cold. I cannot give her the usual immune boosting goodies as it’s contraindicated for her treatment, so please. Help keep my girl healthy this winter!
Her weight and height are holding steady, looks like the growth spurt has slowed temporarily. She’s back on steroids for the remainder of the week, much to her disappointment her Halloween candy has been put away until late next week. Her diabetic tendencies while on her steroids means her diet is very strict during steroid time, so no candy.
Despite the 13 1/2 inches of snow the day before Halloween she got to go trick or treating with her cousins and had a great time. She dressed as an Egyptian Queen and was lovely as always. It was a detour from her usual macabre costumes but I think she just needed to glam it up a bit this year. She is already hard at work planning next year’s costume, she thinks maybe she’ll find some inspiration while we are in Scotland next summer for her Make A Wish trip.
Ten more clinic visits to go! I had thought 9 but realized her appointments run every 28 days so she squeezes in an extra visit.
Until next time…
Glad that the appointment went well and hoping that friends and family will think twice before spending time with her if they’re poorly this winter. 10 to go! Just 10!!!! Must be such hard work emotionally and physically for you both but the visits are running out now. Love ya xxx
By: Paula on November 3, 2011
at 11:06 am