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Alexa had her monthly clinic appointment today and an LP which kicks off her 4th cycle of maintenance!  It’s exciting to see the light at the end of the tunnel, this cycle runs until late February when this cycle is complete she will have TWO cycles left before end of treatment. Just more happiness and excitement around here!

The big news of late is the birth of our newest family member who was born a week ago Monday.  Alexa has a new cousin, a girl named Olivia who is beautiful and perfect and this happy big cousin is very excited.  This photo of the two girlies was taken yesterday while we were visiting.

Thanksgiving was fantastic, she had a wonderful time as always and got lots of snuggle time with Grampy.  This week her Make A Wish wish granters visited her, they haven’t seen her since Summer 2010 so such huge changes for them to see in her.  They brought her some gifts from Scotland which she loves and after reading and talking about Scotland and what to expect she is becoming quite excited for the trip.  They will start scheduling and booking everything in April so we have some time yet before really seeing what’s ahead.  She is quite interested in seeing lots of haunted spots and magical places as well as a growing interest in the Picts and their history as we follow new archeological findings being discovered lately.  so we’ll probably be checking out new glimpses of history too.

As for her appointment today, she is perfect and healthy.  Her height and weight have stalled for a bit, which has always been typical of her this time of year.  She has been working on getting over oral medicine anxieties as well as anxiety that bubbles over on LP days.  Today she decided she would only take half of an Ativan which is a quarter of her anxiety-calming regimen on these LP days.  She was still loopy but more coherent and managed the entire day with no anxiety, nausea or crabbiness.  Success!  Of course the big help today was the clinic’s Ipad which she LOVES, especially the piano app.  I thought this would be something wonderful to have in our anti-anxiety arsenal until someone told me how much they cost. Eeeps!  So, pass on that but maybe one day when the prices drop even more we’ll look at getting one because she has great fun with them.

So, tonight starts the next round of steroids.  She’s feeling a bit sore and loopy still from her procedure however she’ll rest and lay low for a couple of days to recover.  Tomorrow we are off to the eye doctor for a check up and new glasses but then home again to rest.

Happy Holidays to everyone who still checks in here, next update will be end of next month so getting it all in early!

 

until next month…

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