Today was a short and easy clinic visit for Alexa. She has been doing really well, being a 12 year old and just having a great time of it. Today we got news that while her end of treatment is August 10 because she has her last clinic visit on the 8th and thus starts her last cycle of chemo and steroids technically she won’t be done with chemo until her last dose of steroids the morning of August 13th. So an extra few days but nothing to get all worked up over, it will be great to not have nightly chemo. I’m not sure what either of us will know what to do with ourselves!
As for clinic news, she has grown nearly 1/4 inch which brought up a sore subject for Alexa, her full grown height. She has it in her head that she wants to be 5’9″, well. That’s not going to happen, of course her pediatrician said when she was a toddler that the tallest she’d reach would probably be 5’6″ to 5’8″. Today Dr. Chaffee told us that because she is now in the 50th percentile for height (after spending it in the upper 90s on up most of her childhood) it is highly unlikely, though having a tall mum does work in her favor for some reason. So now I have a hormonal, teary and now steroided girl who is heartbroken. Hopefully she will reach a height she is comfortable with, I think that if she wants to pursue kickboxing a more average height my be an advantage. I’ll take anything at this point to help her feel better about it.
So now back to schooling, crafting and reading for the girl, February’s clinic visit brings another spinal tap, her second to last one!
Lastly I wanted to give a heads up to everyone in and around Concord, NH. There is a blood drive in the making, in Alexa’s name, with the Red Cross here in Concord at some point in the next few months. So stay tuned for more info, Alexa and I will be there volunteering and talking with people so they understand and appreciate just how much of a gift their pint of blood is.
She is so strong and so are you! Love and blessings!
By: Lynette Porter-Tinnel on January 25, 2012
at 11:00 pm
Pixie, I was told I would be tall like my mom, that I could model, etc. I fully expected to be at least 5’7″. I stopped growing at 12, and I didn’t face any challenges like you are with your health. I reached 5’2″ and that was it. You know what? I like being tiny. I can wear high heels with any size man and still be shorter, I can fit in small spaces. Besides, I may be short, but I project 5’7″ and so will you! You’re beautiful, and whatever size you end up, will be the perfect size for you.
By: Melissa on January 25, 2012
at 11:20 pm